Wednesday, June 2, 2010

Little improvements

Little Rebecca continues to get rid of her excess fluid through dialysis. There are still some problems with this process but it is working ok for now. Although they aren't doing much right now there seems to be a lot happening today. They gave her a dose of lasix this morning to see if her kidneys were ready to work a little. She has had a little urine output, we didn't expect a lot yet. Her doctor is waiting to talk to the surgeon so see what they want to do about the PD catheter. They may choose to replace it again like they did Friday or they may choose to put a different one in a new location. Most likely they will replace the current one since that worked last time. They just stopped in to do an echo to check a couple of things. They will see if her ductus has closed completely yet and see if her thickening of the heart muscle is going down any. After the echo they will make a determination if she can start to receive some milk through a feeding tube again. It would be a very little amount, 1ml per hour. They continue to wean her vent settings, exciting us to get her extubated but know it may still be a while. One of the cardiologists pointed out today that she didn't get this way overnight and wouldn't get better overnight. Doctors are very cautious to show us any optimism, so we create it ourselves. They all say virtually any set back would be hard to manage in her condition. Out of curiosity, I asked her nurse to see how many X-rays and blood transfusions she has had. The tally blew me away with 93 X-rays and 28 blood transfusions to date.

Since our pathology report of the placenta was inconclusive, both of the twins have had DNA samples sent to the lab to determine if they are identical or not. We should have the results in a couple of weeks.

Joanna continues to pack on the ounces. Last night she weighed 4# 15oz. With this trend she is sure to weigh 5# now as I am typing this. Unbelievable since she was 1# 10oz. just 2 months ago. She has been experimenting with breast feeding but will need some more time to get the mechanics figured out. She got her 2 month immunizations a few days ago which she didn't really care for. It had been a while since she had an encounter with a needle. It is the most wonderful thing to go see her and hear her just grunt and make noises. With each day she is becoming her own self and developing her own personality.

Since I flew here and we only have 1 vehicle here now, I will take Jessica to Louisville in the morning to meet my mom and the girls so Jessica can go home for a few days. This way I will get to see them for just a bit too. Friday night is Katelyn's big dance recital and Thursday night is the rehearsal. It's a big weekend that I will unfortunately have to miss.

Jessica was able to make it to her hair appointment last night she scheduled here a couple of weeks ago. She made one of those drastic changes this time with a short hair cut. She had been wanting this style for a while. We actually got pictures of a hostess at a restaurant Sunday to copy from. We both really like it, and yes I told her that.

When I was home last I got this picture of Katelyn and Kenlee. Every time I looked at it I just kept thinking of an album cover, so I emailed it to a friend of mine because I knew he would think of something clever to do with it. Thanks, Jeremy Secrest for your imagination and creativity.



1 comment:

  1. Okay, so Jessica how come there are no pictures of this short do. You have us all guessing what you look like.
    I am so glad Rebecca is showing improvements. A little at a time may not be your first choice, but I know you are so happy with that. Keep up the good work with Joanna. It sounds as if things are going really well there. Did I catch that right, have you gotten to try breast feeding? If that was correct,hangin there because I know you will be determined to get her on track. She will come aroung slowly but surely.
    Miss you guys so much.

    Jessica

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