Rebecca's Worst Day

The last couple of days have not gone well for Rebecca. She continues to show no improvement from whatever it is that is making her sick and the doctors cannot find what is causing it. They originally thought it was the Pseudomonas but the antibiotics for that are not making her better. They are now also treating her for a fungus although they haven't gotten the results from the test yet. It takes several days to get the results so they went ahead and started the medication. She is in the worst condition she has been yet. Her blood pressure fell to 44/12 late this afternoon. They were going to give her epinephrine but they took it again and it had came back up to 49/29. She has required a lot of oxygen supplementation today to keep her sats up. They have put her on a morphine drip to keep her sedated and comfortable so she doesn't pull the ET tube.  This drip seems to not be enough for her so they are also giving her morphine as needed and verset.  At one point today Jessica texted me and there was the attending doctor and 2 each of Cardiologists, RN's, Respiratory Therapists, Residents, and Fellows at her bedside trying to figure out what is wrong with her and how to treat her. She was requiring 60% oxygen and her sats were still only in the 50's (she needs to be 74-84).  They moved her into some different positions to see if she just wasn't comfortable but nothing was working.  They then suctioned out two nice size thick spit balls out of her ET tube.  After those where out she started improving.  Jessica has had some very rough days with Rebecca as you can imagine. Thankfully, Joanna is doing great and is windowing on her high flow cannula with no problems. Hopefully, she knows why less time is being spent with her the last few days as we are with Rebecca. Jessica's father and sister went to visit today but I'm sure the visit wasn't as enjoyable with everything that was going on. We pray God will take her sickness away and put her back on a clear path to recovery and her procedure. She is so swollen and looks nothing like she did in the pictures from a few weeks ago. This type of sickness can be very concerning if not identified and treated in time. We trust that the doctors are doing everything they can and God will answer our prayers and turn yet another dip in this roller coaster into more good days ahead. Thanks for continuing to follow our girls and pray for them. These are the woods we knew we weren't out of yet.