Let's try this again....

Joanna had two 1 hour long sessions of using the nasal cannula instead of the CPAP machine.  Her lungs did great, but it wiped her energy out.  She was so worn out after each session that the team decided not to have her do another one for awhile. I spoke to her resident regarding her head ultrasound and the bleeds are unchanged.  Its good that they are not getting bigger, but we are wanting them to decrease in size. At this point it is not really anything to worry about.  I asked her if they had reason to believe it was PVL or if they had mentioned that and she said they are not seeing anything that makes them believe it is PVL - THANK YOU GOD!! She continues to get therapy everyday - for about 2-4 hours.  Sue and Ann (OT's) put splints on her legs and left arm to get increased flexibility.  They are seeing much improvement in the little time they have been working with her.  Sue, her main OT, has showed me how to work on straightening her writst and ankles - I love feeling like I am taking care of my baby.

Rebecca's isolette top has been lifted for a few days now because she is able to keep her body heat.  I went to see her yesterday and she was wearing a onesie - her first time in clothes.  Of course I did not have my camera!! She has had some tough respiratory days.  She has been running at about 27% O2 with sats between 75 - 85.  The last few days she was running at about 38 - 40% O2 with sats falling into the 50's at times.  She had her vent settings moved back to what they had been before she started having these issues and that seemed to do the trick.  Her belly was also a little distended so they got an xray and found she had a lot of air in her belly.  Today her belly size was down and she was acting better but I did learn that she is a gassy thing - passing gas all the time according to her nurse!!  What can I say she is just like her daddy.
She is scheduled to have her eye exam on Monday.  This is a test they do on babies 4-6 weeks after delivery where they dialate their pupils and look in the back of the eye to see if she has any retina detachment.
She received a follow up echo on Friday that showed there was no change since the last echo.  She will continue to have echos done each week to ensure there is not change in the heart function.