I (Brandon) got back in town today around 3:00. When I got here we went to Children's to see Rebecca. She was sleeping comfortably but mom just had to get her out and hold her. This is always good for the girls, they seem to take their sleep to another level when they are being held. They had drawn some blood to test for infection. The results showed there may be something going on so they are going to start her on antibiotics again. While we were there they started an IV to begin the antibiotics tonight but she will have to get another PICC put in tomorrow for the long term medicine. She already has a PICC in her left arm but they can't run the antibiotics in the existing PICC because it has the medicine to keep her valve open. They are going to give her a 7 day antibiotics but may increase to 14 day depending if anything else shows up. They really have no other explanation for her O2 sat levels dropping. Also, we notice a change in her color that has been since she aspirated her milk last week. The potential infection may be from that incident. She did pretty good today with her O2 levels. She also had her feeding tube inserted a little deeper just past her stomach into the small bowel. This is to hopefully get her growing faster.
When we walked into see Joanna after dinner there were 3 nurses and a Dr. around her bed. That's never a good sign. The obvious change was that she was back on the original CPAP because they put an IV in her head and it interfered with her other CPAP. They told us this afternoon they had become concerned about a possible infection with her also. Their biggest concern was that her temperature had dropped and she had a large stomach measurement. X-ray showed a lot of air in her stomach so they were going to have to stop her feeds again. Her stomach measured 22.5cm before we got there. Soon after we got there the nurse was doing her assessment and when she went to change her diaper she was busy filling it. The nurse squeezed around on her stomach and helped Joanna get everything out. She measured her stomach after that and it measured 21cm. They think this was part of her problem, needed to poop. They also ordered labs on her blood. It showed she had a low hemoglobin count, so she will get another blood transfusion tonight. Luckily, she is still within time limits to receive from the same unit of blood as before which is good because we know she has no problems with it. We will know tomorrow if they will continue her feedings or if they will have to stop them for a bit. One explanation they gave for needing blood again is that her body is growing faster than it can produce blood for. They weren't concerned that she was losing blood anywhere.
Another day of minor disappointment but we are remaining positive. Hopefully, they will soon be past the volatile preemie stage where everything is a constant struggle just to stay on top of things. It will be nice to have many consecutive days of no problems, never taking them for granted.
Brandon and Jessica, I keep you all in my prayers daily and keep in touch with Chris also. I saw in a magazine last night a blurb from Christopher Robin to Winnie Pooh - "Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think." Sometimes on tough days that's a good thing to remember (and I always liked Pooh, ha). God CHOSE you two to be the daddy and mommy for these two little girls and that's a pretty special thing.
ReplyDeleteFirst of all, i love you all so much, and i'm thinking of you all everyday and i'm praying that joanna and rebecca to have heathly great days everyday with no set backs. i hope that mom and dad are taking care of theirselves during this time. if anyone needs anyhing don't think twice about calling us!
ReplyDeleteJessie and Brandon we can not imagine what you are going through but we pray that god will help comfort you both and give you the strength to get through this..Rebecca and Joanna are the most two amazing precious angels and we will continue to pray for their well being...I hope they get on a good path to recovery and continue on that path..LOVE you ALL..and if you need us let us know..
ReplyDeleteBrandon and Jessica, I visited the HR staff at Methodist this week and was surprised to hear you had delivered Joanna and Rebecca. I pray God watches over you and the girls as they struggle to gain strength and the day comes when you can take them home. Keep the pixs of the girls coming.
ReplyDeleteJust wanted to let you know Eddie and I think about and pray for you guys daily. May God continue to give you strength as you face the good and bad days. Your faith through all of this is such an inspiration. God is working in and through you each and every day. Can't wait to meet those beautiful little miracles! :) - Brittney and Eddie
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