Wednesday, April 21, 2010

Reminders

I was reminded today that we are not out of the woods yet.  You get blind to the fact that our babies are still fighting for their lives because they have been having such good days.

Rebecca had a rough night last night.  Her O2 sats dropped on four occasions and because increasing her O2 was not bringing her levels back up, they were required to "bag" her.  This means they remove the vent connection to the oxygen and manually force air in her airway with a bag they squeeze.  Right before I got there this afternoon she had an episode where her O2 sat dropped into the 40's (they want her between 75-85) and her heartrate dropped into the 70's (normal range for her is between 130 - 160).  Again they were not able to get her back to her normal ranges by increasing the oxygen so they had to "bag" her.  Then while I was there her O2 again dropped into the 40's and had to be "bagged" again. 
After her bad night an xray was done.  It was found that the vent was not located where it needed to be so they moved it down further.  They also said that the xray showed there was a lobe that was deflated so they increased her pressure into her lungs to inflate it.  When they repeated the xray again this evening, it showed that the tube was infact in the right location.

Joanna had a head ultrasound done yesterday as a follow up scan for her bleeds that were discovered a few weeks back.  After the ultrasound was read it looked like the bleeds are still grade II bleeds but there was also a bright spot on the ultrasound that the physician wanted to have scanned again with another ultrasound next Friday.  This bright spot may be nothing but they did mention one thing they look for in preemies is what is called PVL or periventricular leukomalacia.  PVL is the most common brain injury in premature babies.  It is cysts that occur in the white matter of the brain.  Some complications to PVL is mild disabilities such as learning disabilities to severe disabilities which include cerebral palsy.

Please pray for Rebecca to overcome her respiratory set backs and begin to grow so she can have the cardiac cath procedure done.  Once she has this procedure they can begin taking steps to get her off the vent.  Please pray that Joanna's bleeds and the spot they saw today will not be there next Friday.  God CAN do these things!!  Please pray for Brandon and I as we continue down this roller coster of emotions.  Pray that we will continue to lean on God and each other.  Thanks.

6 comments:

  1. Lord I know that you are the God of miracles and you are working in Rebecca and Joanna right know as we pray this. We ask in Jesus name that you stabilize Rebecca's O2 so she can continue to grow and get the heart catheterization done. We also pray for Joanna that you heal the bleeding areas on the brain and allow the bright spot that was there yesterday to be gone next week. Thank you for your continued guidance of the doctors that are working with the girls and we pray that they can continue to make the best decisions conserning their development. Please be with Brandon as her is not there with the girls right now. Help him to trust you and give him peace as he is away. Conitinue to allow Jessica to have the strength to be postive and joyful for her girls as she watches them have setbacks with their health. Finally, allow Brandon and Jessica's marriage to deepen as they lean on you for guidance through this season of their life. We know that you can do all things for those who trust in you. Thank you for your many blessings thus far. Amen.

    Call anytime you need to Jess. I'll talk to you Saturday.

    Jessica

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  2. Hey guys, so sorry to hear about the rough day that you and the girls have had. Prayers continue daily for Rebecca and Joanna and also for you and Brandon that you can not only continue to be strong for the girls but also strong for one another. Praying that tomorrow will be a better day. Love,Angela

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  3. Should have previwed. Concerning not conserning and he for Brandon not her. Not a big deal, but I am OCD.

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  4. Your family will continue to be in our thoughts and prayers everyday. So many people are praying for your beautiful little girls. You are strong, wonderful, loving parents. With the help of God, each other and your friends and family you will make it through these trying times. Please remember, you are not alone, everday, someone, somewhere is thinking of you, praying for you and sending loving thoughts your way. Keep the faith. Your little girls are fighters! Take Care. The Ewalds

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  5. I hate to hear that the girls had some setbacks. Your family will continue to be in our thoughts and prayers everyday. You both are so strong, and those little girls are fighting everyday. Remember that you are not alone Jessica, and we are all here if you need anything!!! Take Care. The Royaltys

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  6. In principle, a good happen, support the views of the author

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